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Keep Living While Waiting for Answers about Pulmonary Hypertension and Tachycardia
Wires attached to my chest lead to a little black monitor worn on by belt. I woke up short of breath and feeling my heart pounding as if trying to leave my chest at about 1:30 this morning. I stood up several times trying to catch my breath and walked to the window to see […]
Pulmonary Hypertension—Take Action, NOW…Live healthy. Smile often. And educate yourself in a practical way.
It’s been less than a couple of months, now, since I learned I have pulmonary hypertension with tachycardia. I felt so helpless at first. The stress echocardiogram left me gasping for air for weeks with no real explanation of what was going on or how serious the condition might be. If you’re suffering with this […]
Facing a difficult diagnosis? Journal to manage the sadness of pulmonary hypertension
Something that I learned years ago as a coping skill was to journal in the form of a kind of discussion prayer, where I explain my feelings and then talk back to myself as a true friend. In my head and heart I hear the voice of God in my responsive part of the writing. […]
Diagnosis–Pulmonary Hypertension–don’t live it until you have to, but DO live!
I’ve been getting a grip on this diagnosis. I understand if you’re out of breath. It’s such a frightening thing, isn’t it? The average person won’t understand what you’re going through. You look fine, yet you feel so awful. There’s so much information out there? Even with a doctor’s education it’s hard to wade […]
Exercise and pulmonary hypertension-positive steps Physical Step ONE
The first physical step I’m going to take is to exercise daily and check my weight first thing in the morning.. I have an oxoimeter to measure O2 levels, blood pressures and heart rate periodically. I’m keeping a strict log of these things to share with my doctores. I’m not doing agressive workouts, just 10-30 […]
Positively live with Pulmonary Hypertension and Supra Ventricular Tachycardia
I’m trying to make sense of a diagnosis that came up during the Stress Eco test that they did for me nearly two weeks ago. I experienced tachycardia following the test with a heart rate peaking at 184 before they got it stopped. Then, the pressure in my pulmonary artery at 51. The pressure being […]
drowning dreams
Hi, I have to admit that I tend to write my blogs with the thought that someone is reading, someone who may even know me, which may or not be true. I often take the reader, you, into consideration and rarely mention too much that might put me into any light other than happy, well […]
Humble Pie served up at Heidi’s Chateau
Craig, Niki, Stefi and I played for the residents at Heidi’s Chateau(Mom’s assisted living home) for the 4th of July BBQ. If you want to be completely humbled, this is the type of environment to perform in. The lady in front of me heckled. I’d say something with a little humor and she’d spit her […]
Without Family I’m a musical maniac! They need to come home and save me from myself!
My family has been gone for the past 12 days. I also relish the time alone, though I miss them so much. There’s less laundry and I can stay up late or get up early and listen to my birds and eat anything I want, mostly healthy things that they don’t like. But, mostly what […]
Good friends keep you grounded
OK, so good friends can keep you grounded. I was playing my guitar at Barnes and Noble this afternoon and a good friend came to share a cup of coffee with me. He’s a “little” hard of hearing. He walked up as I was playing a very intricate classical piece and sincerely said, “I guess […]