The first physical step I’m going to take is to exercise daily and check my weight first thing in the morning.. I have an oxoimeter to measure O2 levels, blood pressures and heart rate periodically. I’m keeping a strict log of these things to share with my doctores. I’m not doing agressive workouts, just 10-30 minutes of gentle but constant movement. I won’t use both my arms and legs during the exercising, but will switch back and forth every other day. I’ll focus on my breathing and imagine my lungs and heart and all of my circulatory system working the way they would if they are the healthiest possible. I’ll accept that I’ll get out of breath and NOT be discouraged by it. That’s just a fact at this point. But, I’ll stop every time I AM short of breath and then begin again, even if it’s several times during this workout. I’ll watch my heart rate and keep it under 120 because of the associated tachycardia I’m dealing with. I’ll do this each and every day, even if I can only do a few minutes. What I’ve read found that this one little change of specific physical activity, even though you can’t push like you are used to pushing a goal, will improve your condition as much as the medications showed to improve others over a period of 3 months of being faithful to it.
Focus on your health while you do this and remain positive. YOU have the ability to lengthen and strengthen your life and to make this a good thing for those around you! And as always, remember to pray.
Sweet Jesus, please show me every step to take while dealing with these healthcare choices. Shield me from the discomfort of this condition as much as possible and make me strong. Above all, Lord, keep my spirits high and stable. I know there will be moments that tears will be shed. Please, give me someone to trust that I can cry with or allow me satisfaction through crying with my dogs. Surround me with your loving essence and heal me if you please. Open my heart to what is and will be as just part of my life and purpose here. Amen
that was beautiful thank you. I do have pulmonary hypertension. I am 19yrs old and I am from Australia. Born and raised in New Zealand to Tongan born parents.
I love my rugby like crazy but have obviously come to the fact that I can’t continue like my otherb friends/family/brothers can… I am not big like them, though I was. I have always been compared to the srtongst of people around me, it was always my way of being good. I loved that idea. But now as I grow older I know that I need to accept this.
I only hope the Lord does keep me on this planet long enough to have children and to see the best things in life. I have just recently got back into excercise myself. I use to love it alt when I was in my mid teens [14-17] but I stopped and have a gained unhealthy and soft body. I now excercise and eat my greens like a good boy should 🙂
Thanks for this. If you can do it, I can too. I hope this reaches others too. I will be saying this prayers I have read on your post as I too find it hard to pray due to me not knowing why I have this disease or sickness. God is good though and I just have to pursue him..
I always ask for a healing cause I am so young. I need/want to liv my life. I would LOVE to play my sport again. Oh well…
Some things can’t be explained.
Take care. Thanks alot.
‘Apai. K
Dear “Apai. K, Thank you for your comment. I’m so sorry that you’re going through such a difficult thing at such a young age. You are in my prayers today, especially. Sometimes I wonder if my words are finding their way to someone to make a difference or not. Your message has lifted MY spirits today and I so want to encourage you to begin taking the best care of yourself possible. I don’t know if it’s possible to play rugby again or not. But, I DO know that the only control we have is to make THIS moment the best it can be. And part of that is wrapped up in taking the best care of ourselves that we can. Keep moving, even if slowly, keep your arms and legs functioning. The exercising I’ve been doing in the water has helped a lot. I’m still not my self that I’d like to be. But, I’m stronger. I use a pool noodle and wrap it around under my arms and then I simply move slowly in the water, letting my legs hang down but not touch the bottom of the pool. I do that until I feel short of breath and then I hang on the noodle until it’s passed and then start again. I pay close attention to my breathing and count slow breaths while I’m doing this. Another thing I’ve begun doing is eating differently. I didn’t think I could do it. I so love to eat. If you want to read about some new thoughts on illness and what to eat, I’ve been studying research that Dr. Joel Fuhrman has been recommending. I figure that eating differently is something that can’t hurt us and if it makes a positive difference, it would be a miracle that I’ll happily accept. If you’re interested, a good book to follow is Super Immunity, written by Dr. Fuhrman, M. D. The book has a lot of research in it. Just read past that and highlight the recommendations. You have nothing to lose. God Bless you and your journey.